Abstract
Background: Patient-reported outcome measures (PROMs) are questionnaires measuring patients’ views of their health status; patient-reported experience measures (PREMs) are questionnaires measuring patients’ perceptions of their experience whilst receiving healthcare. Little is known about the routine use of PREMs and PROMs to improve experience and outcomes in paediatric clinical settings.
Methods: The Joanna Briggs Institute review process was used to map studies that addressed how PREMs/PROMs are used to assess experiences and outcomes of children’s and young people’s (CYP) care and treatment in hospital and what the barriers and facilitators are to using PREMs/PROMs in routine hospital care. Key search terms were developed and seven data bases and sources of grey literature searched.
Results: Abstracts of 24020 sources were screened; 269 were eligible for full-text review and 108 met criteria for inclusion. Ninety-four sources included data on PROM use only; 7 included data on PREM use only and 7 included both PROM and PREM use. Seventy-nine studies (78%) were undertaken in one of three countries (USA, UK and Netherlands) with 12 further countries undertaking 1-8 studies each. A diverse range of specialties (n=29) was included, with PROM and/or PREM use described in mental health and oncology most frequently. Participants included CYP, parent-proxies and health professionals with participant numbers ranging from 1-18687. Barriers to PROM/PREM use included time constraints, limited access to resources and perceived unhelpfulness. Studies reported facilitators as ease of use, perceived helpfulness to inform care and patient/parent perceptions of the importance of the opportunity to report on their experiences and outcomes.
Conclusion: PROMs and PREMs data mayhave the potential to improve patient experiences and outcomes in routine clinical practice by improving the quality of care but their use is infrequently reported. Better reporting of their use and how findings are used to inform routine care is now required.