Abstract
Black African and Black Caribbean women in the UK continue to experience inequalities in breast screening participation and breast cancer outcomes. Their decisions about screening can be influenced by limited awareness, fear of pain or diagnosis, mistrust, lack of representation in health information, competing responsibilities and difficulties arranging or attending appointments.
This study worked directly with Black women and other relevant contributors to turn this evidence into a practical, culturally relevant breast screening intervention toolkit. Seventeen people took part across three online co-design workshops, including Black African and Black Caribbean women with different breast screening and breast cancer experiences, healthcare professionals and behavioural science researchers. Together, they reviewed the main barriers, agreed priority messages and developed the wording, imagery and format of the intervention.
The co-design process produced two linked resources: the C.A.R.E. breast screening information poster and the I-CARE testimonial video. C.A.R.E. stands for Check Your Breasts, Attend Screening, Reassure Yourself and Early Detection Saves Lives. The video features Black women, breast cancer survivors and professional contributors sharing information and experiences to encourage informed screening participation. The resources also provide practical guidance on screening eligibility, what happens during mammography, rearranging appointments and seeking medical advice about breast changes.
The intervention toolkit was designed to complement standard NHS information and may be suitable for use in breast screening and primary care services, community and faith settings, social media and health-awareness activities. Further research is needed to assess its acceptability, feasibility and potential impact in healthcare and community settings.