Abstract
This study investigated the lived experiences of adult women with a formal diagnosis of Asperger syndrome. It is well known that females with this condition are underrepresented in the population and often diagnosed late, which has been associated with negative long term outcomes in adulthood. Thus, the present study aimed to provide further insight into the lives of women with Asperger syndrome, with a view to increase awareness of their particular needs, contribute to service development and specialised clinical knowledge. A qualitative approach was adopted using a semi-structured interview design. Participants were recruited from a primary care specialist community service for adults with Asperger syndrome and from autism related charity organisations. Five women with a formal diagnosis of Asperger syndrome and fitting other relevant study criteria were recruited. The participants ranged in age from 19 to 58 years old. Each interview was transcribed and analysed using Interpretative Phenomenological Analysis (IPA) to capture individual experiences. The analysis highlighted four main themes: hyper-awareness, clarity, social adjusting and deeper understanding. Several interesting conclusions were drawn from the data highlighting the need for improved means of articulating individual need as well as educating professionals to develop sensitivity to how Asperger syndrome may present itself at a young age.