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A thesis of clinical research and practice: Part A: Caring Experience in Functional Neurological  Disorder: A scoping review mapping current state of knowledge; Part B: Interpretative  Phenomenological Analysis exploring older adults’ experiences of ageing with Functional  Neurological Disorder; Part C: Summary of clinical practice and assessments
Doctoral Thesis   Open access

A thesis of clinical research and practice: Part A: Caring Experience in Functional Neurological Disorder: A scoping review mapping current state of knowledge; Part B: Interpretative Phenomenological Analysis exploring older adults’ experiences of ageing with Functional Neurological Disorder; Part C: Summary of clinical practice and assessments

Olga Skonieczna-Rzepka
University of Surrey
Doctor of Psychology (PsychD), University of Surrey
30/09/2026
DOI:
https://doi.org/10.15126/thesis.902285

Abstract

Functional Neurological Disorder FND Older Adults Carers

Functional Neurological Disorder (FND) is an increasingly recognised neurological condition that can have profound psychological, social, and functional impacts on individuals across the lifespan as well as their families and carers who support them. This portfolio aims to centre the experiences of underrepresented groups affected by FND, whose perspectives remain limited within the existing research, through a combination of scoping review and empirical research. Part A presents a scoping review which sought to explore how caregiving in FND has been conceptualised across the literature. The review maps the existing evidence relating to informal caregiving in FND and identifies key characteristics of the caregiving experience. Additionally, it highlights significant gaps within the current evidence base, particularly relating to diversity, caregiving networks, and intervention development. Findings suggest that caregiving in FND is best understood as a dynamic and relational process shaped by broader psychological, contextual, and systemic factors. Part B of this portfolio presents a qualitative empirical study exploring the lived experiences of older adults ageing with Functional Neurological Disorder (FND). Semi structured interviews were conducted with older adults living with FND and analysed using Interpretative Phenomenological Analysis (IPA). Three themes were identified: ‘Identity in Transition’, which explored redefining self and the tension between acceptance and resistance; ‘The Emotional Impact of Ageing with FND’, which captured the emotional toll of unpredictable symptoms and experiences of invalidation; and ‘Navigating Barriers and Building Support’, which highlighted the role of support alongside internal and external barriers to adaptation.

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