Abstract
Introduction: Adult de novo scoliosis is a chronic health condition characterised by a curvature in the ageing spine. It can cause debilitating back pain and significant visible differences. Yet there has been very limited research on the psychological effects of this condition, particularly around identity. Therefore, this study aims to explore the self-identity of those living with adult de novo scoliosis. Methods: One to one semi-structured interviews were conducted with four participants. They were offered an opportunity to provide a detailed account of their experience of adult de novo scoliosis. This data was then analysed using narrative analysis. Findings: Four similarities were identified across participants accounts during the analytic process: Social Roles, Control, Visible Difference and Pain. These were fluid in nature meaning how participants made sense of their adult de novo scoliosis and the salience of different identities (healthy or ill) was everchanging. Conclusion: This study has identified a limited understanding of identity in adults with de novo scoliosis and has started to address this through the interpretation of accounts by those with lived experience. From the above findings, clinical recommendations have been suggested with strengths and limitations acknowledged whilst future research has been advised.