Abstract
There is currently uncertainty and limited research surrounding long-COVID in the paediatric
population. Reports are conflicting regarding the prevalence, duration, and impact of long
COVID on children. Despite the limited evidence, it is becoming increasingly apparent that
numerous children are experiencing long-term physical and psychological effects of COVID19
many months after the initial infection. This thesis aimed to investigate the lived
experience of children with long-COVID. Part one of this portfolio presents a systematic
review of the experiences of parents who provide care for a child with myalgic
encephalomyelitis/chronic fatigue syndrome (ME/CFS). The findings of the review indicate a
paucity of research on parents’ experiences. However, it is apparent that caring for a child
with ME/CFS is an all-encompassing, relentless undertaking, which can detrimentally impact
parents’ well-being, everyday life, and relationships. Given both ME/CFS and long-COVID
are both post-viral illnesses, sharing similar symptoms, with low-level immune system
activation. It may be conjectured that the existing knowledge on children with ME/CFS could
benefit both children suffering from long-COVID and help inform parents on how best to
care for their children. Part two of this portfolio presents an empirical paper exploring the
lived-experience of young people with long-COVID. Reflexive thematic analysis found three
key themes, specifically, the perceived barriers to coping with long-COVID, ongoing
associated emotional distress, and a desire for an integrated approach to long-COVID care.