Abstract
Background: Potentially autistic children and young people in Kent, Surrey and Sussex (KSS) are facing prolonged waiting times to receive a diagnostic assessment for autism. This means that despite having support needs, autistic children and young people are not getting the support in schools without the diagnostic label. This research aims to identify the support needs of potentially (i.e. undiagnosed) autistic children and young people in KSS. Methods: Semi-structured qualitative interviews with autistic children and young people attending 12 different schools across KSS schools have been currently being conducted. The students are asked about the support they currently receive and the additional support needs that they may require. Results: Evidence from 13 interviews conducted with children and young people in schools across KSS suggests that the type of support autistic children receive varies across the three counties. Many students would like to receive 1:1 support from a Teaching Assistant or SENCO, but do not receive such support due to staff shortage/capacity. Autistic students frequently asked for a safe and quiet environment to work or go to when needed during the school day. They also asked for passes that allow them to go to lunch earlier than their classmates so that they can avoid the busy cafeteria environment. Conclusions: Autistic children and young people in KSS have a number of unmet support needs. By listening to their voices, we can make recommendations based on the support needs they require to improve their health and wellbeing and academic performance in schools.