Abstract
In this chapter Hughes identifies Andrew Kötting’s collaborative film Mapping Perception (1998–2002) as an innovative experimental documentary about disability that is still worth viewing today. She develops an interpretation of the film that focuses on the performance of Andrew Kötting’s daughter Eden, who was diagnosed with Joubert syndrome as a baby. The collaboration between the scientists and the artistically gifted Kötting family is viewed as the kind of investigation into dis/ability proposed by Michael Schillmeier in his book Rethinking Disability. The complex manipulation of the aesthetics of filmmaking becomes meaningful through the representation of Eden reflecting on her own life, her articulation of the words that describe her condition and her own agency as a disabled person responding to the demands of the filming process.